A Long and Winding Road: Culture Change on Data Sharing in Exposomics.
Abstract
Data sharing requires cooperation from data generators (e.g., epidemiologists, lab investigators) and data users (e.g., epidemiologists, biostatisticians, computer scientists). Data generation and data use require significant but different skill sets and are separated temporally in many cases. Sharing will require maintaining a history of data generation and a system to address the concerns of data generators around credit for conducting rigorous work (e.g., authorship). Sharing also requires addressing the needs of data users to facilitate harmonization, searchability and QA/QC of data. We present these issues from the perspectives of data generators and data users and include the special case of real-world data (e.g., electronic health records). We conclude with recommendations to address how to better promote data sharing through authorship, cost recovery and addressing ethical issues.
Author List
Members of the Exposomics Consortium*
The Exposomics Consortium consists of participants in the NIEHS Catalytic Workshop Series on the Exposome. *Members were required to opt-in to the roster below.
| Name | Institution | Country |
|---|---|---|
| ADAMU, Yau | University of Iowa | United States |
| ADAR, Sara D. (Sc.D.) | University of Michigan - Ann Arbor | United States |
| ADEBAMOWO, Clement (Prof.) | University of Maryland at Baltimore | United States |
| AKHTARI, Farida (Ph.D.) | NIEHS | United States |
| AKHTARI, Farida (Ph.D.) | NIEHS | United States |
| ARGOS, Maria (Ph.D.) | Boston University | United States |
| ARUNACHALAM, Saravanan (Prof.) | University of North Carolina at Chapel Hill | United States |
| BAUMERT, Brittney (Ph.D.) | University of Southern California | United States |
| BEGLARIAN, Emily (Ms.) | University of Southern California | United States |
| BERGER, Kimberly (Ph.D.) | Sequoia Foundation | United States |
| BHUTANI, Jessie | NIH | United States |
| CAI, Lu (M.D.,Ph.D.) | University of Louisville | United States |
| CALAFAT, Antonia | CDC | United States |
| CHAO, Mu-rong (Prof.) | Chung Shan Medical University | Taiwan |
| CHATZIIOANNOU, Anastasia Chrysovalantou (Ph.D.) | University of Crete | Greece |
| CHENG, Qiwen | Arizona State University, Tempe Campus | United States |
| CHUNG, Ming Kei (Ph.D.) | Chinese University of Hong Kong | Hong Kong |
| CHUNG, Ming Kei (Ph.D.) | Harvard University | United States |
| CHUNG, Ming Kei (Ph.D.) | Chinese University of Hong Kong | Hong Kong |
| CLARK, Robert (Ph.D.) | RTI International | United States |
| COHEN HUBAL, Elaine | EPA | United States |
| COOKE, Marcus (Ph.D.) | University of South Florida | United States |
| COSTELLO, Elizabeth | University of Southern California | United States |
| CUI, Yuxia (Ph.D.) | NIEHS | United States |
| DIERICKX, Erin (Ms.) | University of Connecticut | United States |
| DOLINOY, Dana (Ph.D.) | University of Michigan - Ann Arbor | United States |
| DU, Xiuxia (Prof.) | University of North Carolina at Charlotte | United States |
| DUARTE FOLLE, Aline (Ph.D.) | University of California, Los Angeles | United States |
| GAO, Peng (Prof.) | University of Pittsburgh | United States |
| GAULKE, Christopher (Ph.D.) | University of Illinois at Urbana-Champaign | United States |
| GIEBELHAUS, Ryland T. (Mr.) | University of Alberta | Canada |
| GOODRICH, Jesse (Ph.D.) | University of Southern California | United States |
| GRAFANAKI, Katerina (M.D.,Ph.D.) | University of Patras | Greece |
| GULLAPALLI, Rama (M.D.,Ph.D.) | University of New Mexico | United States |
| HABRE, Rima (Sc.D.) | University of Southern California | United States |
| HANSON, Heidi (Ph.D.) | DOE | United States |
| HARARI, Homero (Ph.D.) | Mount Sinai School of Medicine | United States |
| HART, Jaime (Sc.D.) | Harvard University | United States |
| HE, Jingxuan | University of Southern California | United States |
| HOLMES, Philip | NCIT | United States |
| HOOD, Darryl B. (Ph.D.) | Ohio State University | United States |
| HOUSE, John (M.D.,Ph.D.) | NIEHS | United States |
| HU, Chiung-wen (Prof.) | Chung Shan Medical University | Taiwan |
| HU, Hui (Ph.D.) | Harvard University | United States |
| JAMES, Peter (Sc.D.) | Harvard University | United States |
| JANKOWSKA, Marta (Ph.D.) | Beckman Research Institute, City of Hope | United States |
| JI, Hong (Ph.D.) | University of California, Davis | United States |
| KANNAN, Srimathik@gmail.com (Ph.D.) | CloudAspirers | United States |
| KONSTANTINOU, Corina (Ms.) | Cyprus University of Technology | Cyprus |
| LAI, Yunjia (Ph.D.) | Columbia University | United States |
| LANGSTON, Mike (Prof.) | University of Tennessee - Knoxville | United States |
| LASALLE, Janine (Ph.D.) | University of California, Davis | United States |
| LIANG, Donghai (Ph.D.) | Emory University | United States |
| LIAO, Jiawen (Ph.D.) | University of Southern California | United States |
| LUO, Jiajun (Ph.D.) | University of Chicago | United States |
| MAKRIS, Konstantinos C. (Prof.) | Cyprus University of Technology | Cyprus |
| MANZ, Katherine | University of Michigan - Ann Arbor | United States |
| MILLER, Gary (Ph.D.) | Columbia University | United States |
| MOTSINGER-REIF, Alison (Ph.D.) | NIEHS | United States |
| OUIDIR, Marion | INSERM | France |
| PAGE, Grier (Ph.D.) | RTI International | United States |
| PAN, Shudi | University of Southern California | United States |
| PARKER, Graham (Ph.D.) | Wayne State University / School of Medicine | Canada |
| PAUL, Kimberly (Ph.D.) | University of California, Los Angeles | United States |
| PELUSO, Alina | DOE | United States |
| PENNING, Trevor (Ph.D.) | University of Pennsylvania | United States |
| PIERCE, Brandon | University of Chicago | United States |
| PRAJAPATI, Nirmala (Ms.) | Universite Paris-Saclay/ INSERM | France |
| QUINTANA, Penelope J E (Ph.D.) | San Diego State University | United States |
| RAJASEKAR, Arcot (raja) (Prof.) | University of North Carolina at Chapel Hill | United States |
| RAMESH, Aramandla (Ph.D.) | Meharry Medical College | United States |
| RUDEN, Douglas (Ph.D.) | Wayne State University | United States |
| RUSHING, Blake (Ph.D.) | University of North Carolina at Chapel Hill | United States |
| SCHMITT, Charles (Ph.D.) | NIEHS | United States |
| SCHüSSLER-FIORENZA ROSE, Sophia Miryam (M.D.,Ph.D.) | Standford University | United States |
| SHAH, Ruchir (Ph.D.) | Sciome LLC | United States |
| SHAHRIAR, Mohammad (M.D.) | University of Chicago | United States |
| SOARES, Lissa | State University of New York at Stony Brook | United States |
| SOLIMAN, Ghada (Ph.D.) | City University of New York, Graduate School and University Center | United States |
| STANEK, Lindsay | EPA | United States |
| STATES, J Christopher (Ph.D.) | University of Louisville | United States |
| STINGONE, Jeanette | Columbia University | United States |
| STURLA IRIZARRY, Savannah (Ms.) | University of Michigan - Ann Arbor | United States |
| SUN, Yangbo | University of Tennessee - Memphis | United States |
| TEITELBAUM, Susan (Ph.D.) | Icahn School of Medicine at Mount Sinai | United States |
| TONG, Ai Phuong | University of Washington | United States |
| VIJAYAKUMAR, Nisha | University of South Florida | United States |
| WALKER, Ryan (Ph.D.) | Mount Sinai School of Medicine | United States |
| WANG, Yi (M.D.,Ph.D.) | Canadian Nuclear Laboratories | Canada |
| WHYTE, Kathryn (Ph.D.) | Columbia University | United States |
| WU, K. Lily (Ph.D.) | California Environmental Protection Agency | United States |
| WU, Lang (Prof.) | University of Hawaii - Manoa | United States |
| YUAN, Xin/jean (Ph.D.) | NIH | United States |
| ZHANG, Xinyue (Ph.D.) | Stanford University | United States |
| ZHANG, Qiong | Henry Ford Health System | United States |
| ZHANG, Kai (Ph.D.) | University at Albany | United States |
| ZHAO, Neil | University of Michigan - Ann Arbor | United States |